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PRIMED shares experience and policy recommendations for genomic data sharing

Data sharing recommendations for future research based on experience from the PRIMED Consortium - chart depicting details about data sharing mechanisms, implementing data sharing in the cloud, release of data to scientific community, and engaging diverse communities for data sharing

On July 7, the PRIMED Data Sharing Working Group’s Perspective was published in the American Journal of Human Genetics, describing consortium data sharing policies and procedures to bring together diverse global datasets, implementation of cloud-based data sharing in AnVIL, and experiences with public release of data derivatives. The Perspective also makes policy recommendations to inform future research and data sharing efforts.

Source
The American Journal of Human Genetics
Link to article
Date
07/11/2025